Ready, set, stop: mismatch between self-care beliefs, transition readiness skills, and transition planning among adolescents, young adults, and parents

Clin Pediatr (Phila). 2014 Oct;53(11):1062-8. doi: 10.1177/0009922814541169. Epub 2014 Jul 7.

Abstract

Health care transition (HCT) from pediatric to adult-focused systems is a key milestone for youth. Developing self-care skills and HCT planning are key elements. In a survey at 4 pediatric specialty clinics to 79 youth aged 16 to 25 years and 52 parents, skill-based HCT readiness was assessed using the Transition Readiness Assessment Questionnaire (TRAQ). Multivariable logistic regression evaluated the association between TRAQ scores and self-care beliefs. In all, 70% of youth and 67% of parents believed that they/their child could manage their care. Only 38% of youth and 53% of parents reported thinking about HCT; only 18% of youth and 27% of parents reported having a HCT plan. Youth with higher TRAQ scores were more likely to believe they could manage their care, controlling for age and gender (adjusted odds ratio = 4.0, 95% confidence interval = 1.7-9.5). Transition readiness skills are associated with self-care beliefs. However, a mismatch exists between high reported self-care beliefs and low levels of transition planning.

Keywords: adolescent; health care transition.

Publication types

  • Research Support, N.I.H., Extramural
  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adolescent
  • Adult
  • Boston
  • Chronic Disease
  • Female
  • Health Knowledge, Attitudes, Practice*
  • Humans
  • Male
  • Needs Assessment / statistics & numerical data*
  • Parents*
  • Self Care / methods*
  • Self Care / statistics & numerical data*
  • Surveys and Questionnaires
  • Transition to Adult Care / statistics & numerical data*
  • Young Adult