Patients' attitudes toward the donation of biological materials for the derivation of induced pluripotent stem cells

Ishan Dasgupta; Juli Bollinger; Debra J H Mathews; Neil M Neumann; Abbas Rattani; Jeremy Sugarman

doi:10.1016/j.stem.2013.12.006

Patients' attitudes toward the donation of biological materials for the derivation of induced pluripotent stem cells

Cell Stem Cell. 2014 Jan 2;14(1):9-12. doi: 10.1016/j.stem.2013.12.006.

Authors

Ishan Dasgupta¹, Juli Bollinger², Debra J H Mathews³, Neil M Neumann⁴, Abbas Rattani¹, Jeremy Sugarman⁵

Affiliations

¹ Berman Institute of Bioethics, Johns Hopkins University, Baltimore, MD, 21205 USA.
² Berman Institute of Bioethics, Johns Hopkins University, Baltimore, MD, 21205 USA; Genetics and Public Policy Center, Johns Hopkins University, Washington, D.C., 20036 USA.
³ Berman Institute of Bioethics, Johns Hopkins University, Baltimore, MD, 21205 USA; School of Medicine, Johns Hopkins University, Baltimore, MD 21205, USA.
⁴ School of Medicine, Johns Hopkins University, Baltimore, MD 21205, USA; Medical Scientist Training Program, Johns Hopkins University, Baltimore, MD 212105, USA.
⁵ Berman Institute of Bioethics, Johns Hopkins University, Baltimore, MD, 21205 USA; School of Medicine, Johns Hopkins University, Baltimore, MD 21205, USA. Electronic address: jsugarman@jhu.edu.

Abstract

Although academics have raised ethical issues with iPSCs, patients' perspectives on them and their attitudes toward donating biological materials for iPSC research are unclear. Here, we provide such information to aid in developing policies for consent, collection, and use of biological materials for deriving iPSCs based on patient focus groups.

Publication types

Research Support, Non-U.S. Gov't

MeSH terms

Adolescent
Adult
Female
Focus Groups
Health Knowledge, Attitudes, Practice*
Humans
Induced Pluripotent Stem Cells / cytology*
Male
Middle Aged
Patient Participation
Patients / psychology*
Stem Cell Research / ethics*
Stem Cell Research / legislation & jurisprudence
Tissue Donors*
Young Adult

Grants and funding

T32 GM007309/GM/NIGMS NIH HHS/United States