Impact of neurofibromatosis type 1 on school performance

J Child Neurol. 2008 Sep;23(9):1002-10. doi: 10.1177/0883073808316366.

Abstract

School functioning of 86 Dutch neurofibromatosis type 1 children (7-17 years) using teacher questionnaires was analyzed to determine the impact of neurofibromatosis type 1 on school performance. In all, 75% of the neurofibromatosis type 1 children performed more than 1 standard deviation below grade peers in at least one of the domains of spelling, mathematics, technical reading or comprehensive reading. Furthermore, neurofibromatosis type 1 children had a 4-fold increased risk for attending special education and a 6-fold increased risk for receiving remedial teaching for learning, behavior, speech, or motor problems. Children without apparent learning disabilities still frequently displayed neuropsychological deficits. Only 10% of the children did not show any school-functioning problems. Finally, it was found that the clinical severity of neurofibromatosis type 1 correlated with the cognitive deficits. Taken together, it was shown that neurofibromatosis type 1 has profound impact on school performance. Awareness of these problems may facilitate timely recognition and appropriate support.

Publication types

  • Research Support, Non-U.S. Gov't

MeSH terms

  • Adolescent
  • Child
  • Cognition Disorders / diagnosis
  • Cognition Disorders / etiology*
  • Disability Evaluation
  • Disease Progression
  • Female
  • Humans
  • Learning Disabilities / diagnosis
  • Learning Disabilities / etiology*
  • Male
  • Netherlands
  • Neurofibromatosis 1 / complications*
  • Neurofibromatosis 1 / psychology*
  • Neuropsychological Tests
  • Remedial Teaching / statistics & numerical data
  • Schools*
  • Surveys and Questionnaires