Recruiting African-American research participation in the Jackson Heart Study: methods, response rates, and sample description

Ethn Dis. 2005 Autumn;15(4 Suppl 6):S6-18-29.

Abstract

Objective: The sampling and recruitment methods, response rate, and cohort description for the all-African-American Jackson Heart Study (JHS) are detailed.

Methods: Four subsamples of participants residing in the Jackson, Mississippi metropolitan statistical area (MSA) were included: random, volunteer, ARIC (continuing from Atherosclerosis Risk in Communities study), and family. A community-driven recruitment model was developed, and community representatives guided recruitment.

Results: 96% (n=5,302) of target enrollment was achieved with diversity in sex, education, and income. The JHS cohort provides a sample of African-American adults for longitudinal investigation.

Discussion: Cohort recruitment was challenging. The JHS experiences provide useful lessons for observational epidemiological studies recruiting African-American research participation. Co-participation of researchers and researched in study design and realistic evidence of community benefit were crucial to recruitment success.

Publication types

  • Research Support, N.I.H., Extramural
  • Research Support, U.S. Gov't, P.H.S.

MeSH terms

  • Adult
  • Aged
  • Aged, 80 and over
  • Black People*
  • Black or African American
  • Cardiovascular Diseases / epidemiology
  • Cardiovascular Diseases / ethnology*
  • Female
  • Humans
  • Male
  • Middle Aged
  • Mississippi / epidemiology
  • Patient Selection*
  • Prospective Studies
  • Research Design*
  • Research Subjects
  • Residence Characteristics