Abstract
This paper investigates whether HIPAA de-identification requirements--as well as proposed AAMC de-identification standards--were met in a large clinical data mining study (1997-2001) conducted at Duke University prior to the publication of the final rule. While HIPAA has improved de-identification standards, the study also shows that privacy issues may persist even in de-identified large clinical databases.
Publication types
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Research Support, U.S. Gov't, P.H.S.
MeSH terms
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Biomedical Research / legislation & jurisprudence*
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Computer Security / legislation & jurisprudence*
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Confidentiality / legislation & jurisprudence*
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Database Management Systems / legislation & jurisprudence*
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Health Insurance Portability and Accountability Act*
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Humans
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Information Systems / organization & administration*
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Medical Records Systems, Computerized / legislation & jurisprudence*
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Patient Identification Systems
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United States