A prospective study of long-term caregiver and family adaptation following brain injury in children

J Head Trauma Rehabil. 2002 Apr;17(2):96-111. doi: 10.1097/00001199-200204000-00003.

Abstract

Objective: We examined long-term differences in family adaptation following traumatic brain injuries (TBI) and orthopedic injuries.

Design: Families of children with severe TBI (n = 53), moderate TBI (n = 56), and orthopedic injuries (n = 80) were assessed at baseline, 6 months, and 12 months post injury and at an extended follow-up an average of 4.1 years post injury. Caregiver and family outcomes were examined using mixed model analysis.

Results: Patterns of adaptation over time varied across groups but indicated long-standing injury-related stress and burden in the severe TBI group.

Conclusions: Severe TBI results in persistent caregiver stress for a substantial proportion of families.

Publication types

  • Comparative Study
  • Research Support, U.S. Gov't, P.H.S.

MeSH terms

  • Adaptation, Psychological
  • Brain Injury, Chronic / psychology*
  • Brain Injury, Chronic / rehabilitation*
  • Caregivers / psychology*
  • Child
  • Cohort Studies
  • Female
  • Follow-Up Studies
  • Humans
  • Injury Severity Score
  • Long-Term Care
  • Male
  • Parent-Child Relations*
  • Prospective Studies
  • Risk Assessment
  • Sampling Studies
  • Stress, Psychological
  • Time Factors
  • Treatment Outcome