CF carrier testing in a high risk population: anxiety, risk perceptions, and reproductive plans of carrier by "non-carrier" couples

Genet Med. 1999 Nov-Dec;1(7):323-7. doi: 10.1097/00125817-199911000-00002.

Abstract

Purpose: The risk perceptions, psychological status and reproductive plans of 52 carrier by "noncarrier" (mutation screen negative) couples is the subject of this report.

Methods: Cystic fibrosis (CF) carrier testing was offered to relatives of individuals with CF.

Results: In this population testing was not associated with any significant adverse psychological effects, reproductive uncertainty, or inaccurate risk perceptions.

Conclusions: The results of this study have important implications in light of the recent NIH CF Consensus Panel recommendations that CF carrier testing be offered to all high risk adults and all couples planning a pregnancy or seeking prenatal testing.

Publication types

  • Research Support, U.S. Gov't, P.H.S.

MeSH terms

  • Adult
  • Cystic Fibrosis / genetics*
  • Cystic Fibrosis / psychology
  • Female
  • Genetic Carrier Screening*
  • Genetic Counseling
  • Genetic Testing / psychology
  • Humans
  • Male
  • Patient Education as Topic
  • Reproduction*
  • Risk Factors